June 11: HAPPY 5TH BIRTHDAY LITTLE BUDDY!!!

It's here!  It's here!  It's Little Buddy's 5th birthday!  Obviously, every day is a milestone and a miracle now, but reaching the big number 5 is of particular importance to us.  It's been quite a year for our little man:  autism misdiagnosis, Sanfilippo diagnosis, and acceptance into a potentially life-saving clinical trial.  We can only hope that Little Buddy has many more healthy and history-making years ahead.

Waking up as a 5 year-old!

Blowing out the candle on his birthday waffles!

"Momma, what's in the yard?"

"It's for me!  W-I-L-L, that's Will!"

Very excited by a big surprise in the front yard!  A thank you to our wonderful friends for the sign!

We took the morning pretty slowly as we were still tired from our trip.  Little Buddy asked for Chuy's for lunch, but then didn't have an appetite once we got there.  Sadly, this was a precursor to him getting sick again.  Thankfully, after a rest, he seemed fine and was ready for his birthday event at his other favorite restaurant, Jason's Deli.  His appetite definitely returned too! 

     

Everything is awesome!  Ready for his Lego party to start!

Hanging with Uncle C and Aunt A!

Cake time!

     

Got his picture at 7:04 PM...the exact moment he turned 5.  Love you, sweet boy!

Such a wonderful day!  We can't thank our friends so much for supporting us and supporting WILLPower!

     

Had to do a few more candle blowouts...once with a cupcake on his birthday plate and once we when cut into the smash cake.  He loves birthday candles!

Checking out all his new books from his birthday!  Can't wait to read them during his infusions!

Height and Weight

He has definitely grown!  He's just under 47 in. now but his weight went down a bit to 56.2 lbs.  

Personality

Happy and very talkative lately!  It's been so great to have him home now all day now that school is out, but I hadn't realized what a chatterbox he's become!

Developmental Milestones

Again, still a lot of speech progress and expressing of his thoughts and ideas.  We'll be monitoring even closer now to see if we see any new developments that could be attributed to the infusions.  

Fun Tidbits

Since Little Buddy cannot understand what is happening to him right now, neither with Sanfilippo nor with the enzyme replacement therapy, we've taken to telling him that he is becoming a super hero.  We told him that he had a port put in his chest like Iron Man and that they will put "super juice" in it when we come to the hospital.  He seems to like the idea, so hopefully this will help keep him calm! 

And that's all for today.  We are just so blessed to have had this beautiful boy in our lives for 5 years!  We pray every day that we continue to have him with us, lighting up our lives, for many more birthdays.

Good night,

LBM

Little Buddy's Momma