Tuesday, October 11, 2022

October 11

Fall is in full swing and the year keeps rolling along.  Thankfully, our Little Buddy is rolling right along with it and doing well! 

We did manage to finish off our summer with one an Astros game before fully committing to the changing seasons (not that the weather part of the season changes much here yet, just the activities and the calendar!).

     





Great day at the ballpark!


As summer closes out, Fall brings some of Little Buddy's favorite things, like...


...Pumpkin Pancakes...


     

...Run Club...




...and Bones Pajamas!


Unfortunately, fall can also bring allergies.  Little Buddy was pretty miserable for a few weeks with sinus and cough issues that he can't understand.  He can't use an inhaler to open his lungs either, so our trusty nebulizer went to the rescue again!


If looks could kill...but he feels better!


The other thing fall brought this year was a LONG fall break.  Little Buddy's school district decided to implement a new school schedule this year where he basically has a week off every month.  I'm not a huge fan of him going in and out oft routine, but we'll see how this year goes.  I enjoyed spending time with him and especially having time for him to get a much needed haircut!

     

Hitting the beloved book maze after our library visit!


     

So excited to get his lion's mane chopped off!


     

Finally!  Much needed and so handsome!



And special lunch with Momma and Daddy (again!) post haircut.  Just living the life!



What never changes with the seasons?  Someone's love of bedtime stories and cuddles.


Goodnight Buddy!



Height and Weight
Not disappointed in our weight gain...up to 107 pounds this month!  Also he had his genetics check up and he is nearly 63 inches now!  So pleased with all his growth, as well as with the report from his geneticist as to how well he's doing overall.  


As predicted, the Momma-approved school picture came out great!


     

Excellent genetics appointment followed by lunch out with Momma and Daddy!


Personality
It feels repetitive, but being able to report every month that our favorite guy is still happy and smiling is such a huge blessing that we do not take for granted!


     

Snack time smiles are the best!


Developmental Changes
Along with his stellar genetics appointment, we've been really happy with how Little Buddy is doing with all his skills.  Although we're still fighting to regain his twice a week regiment of therapies (we got speech approved, but OT is still being fought for and now PT needs an appeal as well), we've been using the extra afternoon time to work with him more on his learning time.  We've haven't had a ton of time to do this with him because of his and Little Sister's schedule, so if I have more time with him while we wait for therapies to be reinstated, this is a good use of it!  He's doing very with all of it too!


Shape sorting like a champ!


Thankfully, we still have horse therapy, which helps so much, especially when we are on reduced PT load.

     

Working those muscles at the ranch!


He's also doing well at school and had his successful ARD.  It's a bit crazy to think about how he is now able to sit still long enough to pay attention to things more.  We know it's a function of his body changing due to Sanfilippo Syndrome, but we do like that he can focus longer on topics without getting as distracted during school and other activities.


Sitting patiently through his Faith Formation lesson.


Fun Tidbits
During Little Buddy's school's Homecoming Week, they let kids in the developmental class wear extra team jerseys and be honorary football players.  Little Buddy looked so official in his and he really enjoyed the Pep Rally!

     



Our handsome football player!



And that's another month.  Looking forward to November and the holidays coming up!

Good night, 

LBM

Little Buddy's Momma