I'm in Chicago visiting a friend. The kids are home with Daddy and a visiting Mimi and Pop-Pop. And we just got a call telling us that Little Buddy's trial is cancelled. That the drug is helping, but not "enough" for them to reinvest in it. Who are they to decide "enough"? Anything helpful is enough when it is a terminal disease with no treatment option.
Our world is very dark today. We don't know where we go from here. Please keep us in your prayers.
He deserves to have the highest quality of life for as long as possible. She deserves to make good memories with her brother as long as possible. Why is that so difficult for drug companies to understand?
A very broken,
LBM
Little Buddy's Momma
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