Saturday, May 21, 2016

Purple Week 2016!

May 15th is International Awareness Day and, like last year, we wanted to use this day to help raise awareness about Sanfilippo and other MPS disorders.  But a day just isn't enough to get out the information and make the impact we need; so it was time for Purple Week 2016!

We started the week off cheering Mr. J (father of one of Little Buddy's friends) on as he ran The Woodlands Ironman with WILLPower!  The weather was crazy, but Little Buddy had such a great time cheering!

     

     

There he is, in his custom WILLPower suit!




     

Go Mr. J!  


Thank you, Mr. J, for doing your Ironman in honor of Little Buddy and all the other families fighting this disease!



As the week continued, we held several more events.  My Gym held two pay-to-play days and we pulled off our first big event, A Night of WILLPower!

     

 WILLPower was the word of the day during clay time at Little Buddy's school!



     


Great crowd at My Gym for our Pay-to-Play events!  Can't thank My Gym for all of their support this week and always!



We closed the week with our First Annual Night of WILLPower.  This event was a labor of love that was undertaken by our "village."  Truly, this night would not have happened without the extensive volunteer work of our dear friends.  We ended up raising over $20,000 this week from Purple Week and can't thank everyone enough for supporting the research needed to stop Sanfilippo Syndrome!



The room!  We had food, drinks, a silent auction, a raffle, informational tables, photo station, etc.






The amazing painting of Will that one of our supporters painted for the evening.  My sweet boy.





Just a few of the gorgeous volunteers that I can't even begin to thank.  We love you all!




 The event was held past Little Buddy's bedtime, but we had him there in spirit.  We love you, our dear boy.  We will never stop fighting for you!  



With WILLPower, 

LBM

Little Buddy's Momma

(aka Momma WILLPower)

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