March 11

We've been settling into to 2016 fairly well.  Besides all of our family date days and his great race performance, Little Buddy is happy and healthy (and he certainly enjoys Valentines cookies)!

     

Making heart cookies for his teachers!

He enjoyed his Valentines party at school, but then finished his celebrations by jumping off his swing while playing at home.  The head bump just makes him cuter, right?

Also, his smiles and bravery never waiver.  Though sometimes he gets sleepy.

     

All smiles in the hotel and then super strong during infusion day.  He continues to be my hero.

But even heroes need their rest.  And so do their mommas.  Taking a quick 30 reprieve on the way to the airport is good for him and for me during our adventures!

And Minnesota wasn't my only traveling day this month.  I was privileged to go Washington, D.C. on behalf of the National MPS Society on Rare Disease Day to lobby for legislation to help Little Buddy and kids like him.

Momma hates to leave these two, but it is for a good cause!

Doing my rare disease legislation homework!

All in our purple for Rare Disease Day!

Here's hoping we did some good this trip!

Height and Weight

Still at around 48.5 inches and 60 lbs, 10 ounces.  And still looking more grown up every day, especially after a much needed haircut!

Personality

Much happier this month.  Still a bit emotional and less talkative in the evenings, but we think that is just because he is so tired from school.  Overall, though, much more settled than last month.  Honestly, I think it just takes him awhile to get back into a routine after a break.   

Developmental Milestones

This month the word of the moment has been "not."  According to him, he does "not" want to do most of the things we tell him to do.  Although this is frustrating, he never went through the "no" stage that most kids do, so we hope it is a sign that he is gaining more ways to communicate!

Still lots of talking and lots of singing.  I will never get tired of hearing his voice!  We also notice that we need to keep on him with some tasks.  We worry about regression when he doesn't do things he used to do as quickly or easily as he used to do them (e.g., putting on his clothes) but then we realize that, due to time constraints, we have been doing some of these things for him instead of taking the time to make him do it himself.  Thankfully, when we do take the time to work with him, he quickly regains and remasters the skill.  

Fun Tidbits

Our little boy has the rare gift of the connecting with the people that many people overlook.  From TSA agents to custodians, he makes everyone he connects with his friend.  Sadly, though, one of his favorite people won't be in his daily life anymore.  Ms. M is his favorite custodian at school (and arguably his favorite person in general) and she is moving on to a new job.  He is going to miss her smiles (and sweeping) every day at lunch.

We'll miss you, Ms. M!

Until next month, 

LBM

Little Buddy's Momma