Friday, April 18, 2025

April 11

We made it to Spring Break!  Or Spring BreakS, as Little Buddy and Little Sister actually had two different breaks. Little Sister was off first and then Little Buddy the next week. Unfortunately, that meant we really couldn't do any trips or outings during the week, but we did decide to make a quick weekend trip to Waco.



Ready for an adventure!



We literally only spent one night in Waco and needed this much stuff. Oh special needs parenting life!

We started our trip at Mammoth National Monument, where we learned about Columbian mammoths and got another National Parks site crossed off our list. 

          


Very cool checking out the fossils!



Cosied up for bedtime to get some rest before Day 2!

The next morning we enjoyed exploring Cameron Park Zoo. It was a small zoo, but had a lot of interesting animals!


Zoo time!


     



I like the smaller zoo because we were able to do all of it in a morning!


     )

Highlights included seeing an African elephant (Houston Zoo only has Asian elephants) the Kori bustard (which Little Sister nicknamed the "Chalama" because of its very unique appearance). 



It was a good trip, but it definitely wore our Little Buddy out!



We even stopped at Baylor and got to see the bears they actually have on campus!


As we came out of Little Buddy's severe allergy season, we started to see more smiles and eye gaze engagement. It's such a relief to see them!

     

     


Feeling lucky on St. Patrick's Day with these two!


     

Not super smily after being subjected to a haircut...


     

...but definitely getting smiles during snack!


Another cool thing this month was participating in the food packing event at our Church for Lent. We made it a service activity for Little Sister's Girl Scout troop and their families, but it was a really cool event and Little Buddy enjoyed hanging out with us.  Afterward, we got to go to Chuy's with one of Little Sister's friends!
     


Feeling very thankful for friends that love our boy!


Weight
With less pollen, we are definitely doing better in the eating department! Besides more smiles and engagement, I am thrilled to report we are back up to 125.4 pounds!


There's my boy!


     

Good appetite means that he gets to enjoy his favorite...pie!


Personality
Again, we are doing so much better now that our allergy season is passing, but this boy is still pretty sleepy...maybe we're having another grown spurt?

     

     

Getting his rest.



But we are always happy to enjoy some happy cuddles!


Developmental Changes
Little Buddy has been doing well with his STAAR Alt testing at school and he was very engaged at his Amazing Grace Faith Formation class this month. He loved making his craft!

     


     

Why hello sir! You're doing great work! 


Fun Tidbits
With everyone going on, we did somehow manage to fit in a visit to the Easter Bunny! Little Buddy loved interacting with him and smiled for days afterward anytime we mentioned the visit. 


Hippity-hop!

Now we are just counting down the days until Easter and then until the end of the school year.  How is he finishing his freshman year?

Good night, 

LBM

Little Buddy's Momma


Tuesday, March 11, 2025

March 11

Well we have been trucking along into March, which for us includes a very busy time, marathon season! We also had a February break to contend with as well as some spring allergies. Ay yi yi!

The end of February around Little Sister at her 5th grade retreat at Camp Kappe and Little Buddy on his Mid-Winter break from school. Daddy had to chaperone at Camp Kappe for a few days as well, so we didn't get too crazy on his break, but we did make it out for some walks on the Waterway and lunch at House of Pies!




     

Excited for pie time!


Little Sister did make it back just in time for Valentine's Day, so we were able to celebrate both our loves together!

     

Happy Valentine's Day!


And then it was time to get ready for all the Marathon events! Little Buddy finished up his training and was ready to race!


One of his last training runs!


     

Cold day, but ready to race!



     

Finish line time!



Glad for both the kids to be part of the SECS Run Club!



     

Showing off his medals! We know it's less of a "run" and more of a "walk" for him for the Kids' Race these days, but we are still so proud of every step!


Now time to prepare for longer events!

     

Charity Challenge winner ready!


     

Great job fundraising Team WILLPower! Now go run!


     


Grateful for all our WILLPower runners!




Traditional post-race Chuy's lunch and picture!


It's always nice to take a breath after Marathon season ends, but this time of year also lines up with the anniversary of Little Buddy's diagnosis. It's always a tough day, but to know that this is the 10th anniversary of hearing our son had Sanfilippo just weighs a little heavier. Seemed almost fitting that it fell on Ash Wednesday this year. 


D-Day: A time for reflection indeed. 


Height and Weight
Well, unfortunately, someone's spring allergies have hit in a major way, which is messing up with his swallowing and eating again. We are unfortunately down to 121 lbs. and we are having to employ all of our strategies again to try to combat this before it become a real problem.  


Personality
Overall, still happy, but the allergies are messing with everything. He's so sleepy a lot of the time. 


We love him so much!

Developmental Changes
The allergies are NOT fun. Difficulty eating means less food and less energy and more sleepy buddy. Lots of napping, meaning it's hard to get him to work on his skills. It's a rough season and it's hard not to have the engaging interactions we normally have with him. Those smiles and looks fuel us and we miss them! Hopeing we can get our smiley boy back soon!


    Beautiful boy, I hate that you have to struggle so much. 


Fun Tidbits
We, by luck, found out about Spring pictures for his school and managed to get him scheduled in. This was such a blessing as his Fall pictures were TERRIBLE thanks to all his struggles following our National Parks trip. Glad to get a picture more representative of our boy!


Our high school freshmen!

And that's that!  Next month will find us with 2 different Spring Breaks for Little Buddy and Little Sister and hopefully less pollen. 

Good night, 

LBM

Little Buddy's Momma