Coming out of April and into May brought us to our some of our favorite family traditions as we prepared for Easter! We started off with our annual visit to Adkinson Farms to pick strawberries on Good Friday, which we then both ate and made into jam!
Strawberry time!
The weekend continued with the IronKids race, where we got to see a lot of our friends. It's been several years since we've been able participate in this race, so it was nice to be able to run it again!
Team WILLPower, ready to run!
Little Buddy did it again!
Great job, Little Buddy!
Happy Easter!
Found our eggs and baskets!
New hiding places outside at the new house!
Our happy boy!
Easy lunch!
With our racing season being done, we were very happy to cheer on our friend, Ms. S, at Ironman!
Go Ms. S!
We also finally convinced Little Sister to try Star Wars again and got to have a family movie day!
May the Force be with you!
Also, Happy Mother's Day to me! No better way to start off the month of May than reflecting on the blessing of being Momma to my Little Buddy and Little Sister. We started the day with listening to Little Sweetie sing at Mass and then we spent day together.
So thankful for all these blessings!
Weight
Miracle of miracles, Little Buddy is up to 129.9 pounds! While still eating slowly, we are thrilled that he is still taking food by mouth and packing on those pounds again.
With eating better and feeling better, our Spring school picture was a huge improvement over the Fall one!
Personality
Very happy to see all of these smiles! Every single one of them feels like a victory. Without his sweet voice and words any more, we really depend on his eye gaze and facial expressions to tell us how he is feeling.
Looking good Little Buddy!
Developmental Changes
Little Buddy continues to deal with tightness, tiredness, and weakness. These are hallmarks of aging with Sanfilippo, but we are doing everything we can to help him keep his muscles strong and his skills sharp for as long as possible.
Long sitting with Little Sister (both of them need to work on their stretching)!
Horse therapy keeps that core strong!
We don't have as much time as I would like in our day to work on our fine motor skills, but he's still stacking blocks like a master and loving it!
But naps are a constant need. It's rough being a high school freshman!
Fun Tidbits
Happy House Day! We are hitting a lot of anniversaries this month as we reflect on our moving adventures from last year. We've now owned our new house for one year and we couldn't be happier with how everyone worked out. It's definitely been a good fit for Little Buddy and for all of us!
One year since closing!
It's hard to believe, but in one month we will have a rising sophomore and a 15 tear old! How did this happen?? Ay yi yi!
Good night,
LBM
Little Buddy's Momma
