Friday, February 11, 2022

Feb. 11

Well, 2022 came on like a freight train and we've been VERY busy around here, but thankfully our health and our spirits are all in good shape!

As I mentioned last month, Little Buddy is gearing up for his next Charity Challenge race, so keeping up with his training is part of the package!  We've been very busy with Run Club and making sure our boy gets lots of walks in too.


It might be cold, but we gotta get those steps in!


     


Happy boy out on the track!


     

     

So tall and so smiley!

Love being part of Run Club!


But a training plan isn't complete without some cross training, so we were glad when horse therapy started back up following winter break!


     

     

The benefits of Little Buddy being able to ride cannot be overstated!


Speaking of Winter Break, we may have let Little Buddy's hair get a little crazy!


     

Crazy hair, don't care!


Thankfully the kids had a day off of school last month and we were able to get that mane under control.


So stylin'!



Celebrating with some Chuy's afterward!


Winter Break also made someone very comfortable with sleeping in.  He's so darn cute when he sleeps that it's hard to wake him up, but school waits for no man!



Adorable, sleepy boy!



Thankfully, he's still usually his happy self a few moments after waking up!



As for school, someone's doing great there too!  Can't believe he's over halfway done with his first year of middle school


Proud of our 6th grader!



Height and Weight
Someone has grown off his growth chart (!) so we can only measure his weight now, which was up to 103.6 pounds this month.  

Look at this pre-teen!


Personality
He's happy and loving and our boy.  A little more jerky lately, but that doesn't seem to be affecting his mood or agitation level.

     

     

Our sweetheart.


Developmental Changes
He's been doing really well with all his therapies lately.  While we can't stop the progression of Sanfilippo or reverse it, we try to minimize the degeneration of abilities as much as we can!

     

Really great work feeding himself with a fork with only minor assistance with spearing!



Making his choices known through pictures!


     

Lots of stretching to keep our legs loose, strong, and walking.


Fun Tidbits
It's never a dull moment around here, that's for sure!



Sometimes you just need to watch TV with Batman.


Can't believe next month will put us finished with our latest Charity Challenge...I think this is number 7???  Crazy!  

Good night,

LBM

Little Buddy's Momma


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