December 11

And here we are, Level 12 of 2020!  We are blessed to have made it to the end of this year with our health and our (overall) sanity.  

We've had a lot going on this past month and it certainly isn't slowing down as we head into the holidays.

First up, we celebrated World Sanfilippo Day in Mid-November.  Little Buddy's new school has an awesome rock that you can rent and paint for events.  We decided it needed a little purple power!

It was great fun to paint and looked awesome!

Our Sanfilippo Super Hero spreading some WILLPower!

November also brings Thanksgiving.  A difficult year for so many, buy goodness knows we have so much for which we are thankful.  Every day together is a blessing and we won't take them for granted.

     

     

Thankful, thankful, thankful!

Little Buddy is definitely thankful for pie!

The end of Thanksgiving means the start of the Christmas season for us!  Our elf, Pat, arrived from the North Pole and we put up our decorations. and began lighting our Advent wreath.  

     

     

Christmas is coming!

We even got to get into the spirit of the season (safely) by enjoying a drive thru light park!

     

The weather even cooperated a little bit and allowed us to wear some winter clothes!  Doesn't he look dapper?

Height and Weight

Up this month to 92.6!  And right about 58.5 inches this month!

Look at this amazing fifth grade picture!

Personality

Still loving and lovable!  We've been so thankful that he's been having so many good days of interaction and attention.

     

This boy is a treasure!

Developmental Changes

Eating, sleeping, and doing well!  We continually are surprised at how strong he is; he somehow seems to be getting stronger, which really shouldn't be possible with his condition.  We give a lot of credit to his excellent therapists and (hopefully!) the clinical trial medication.  

     

Loving running in the cooler temperatures!

Getting stretched out by Daddy!

Gazing adoringly at this PT as she helps him get "strong muscles!"

Fun Tidbits

Little Sister has been enjoying "entertaining" all of us (especially Big Brother since he can't tell her to stop) with her accordion playing.   Oh what a time to be working from home, lol!

It's always an adventure around here!

Whelp, 2021 is just around the corner.  Here's hoping we can stay happy in the status quo.   The Coronavirus vaccine is set to ship out, so hopefully it's the beginning of the end of the pandemic.  

Here's hoping, 

LBM

Little Buddy's Momma