November 11

Last month was one of our busiest of the year!  It seemed liked we had something every day.  I'll be glad for things to slow down just little this month so we can focus on enjoying the upcoming holidays.

One of the things we were busy with was Little Sister's birthday!  We got some great family shots and pictures of Little Buddy during her birthday photo sessions.  He also had great fun at her birthday party!  

     

Birthday party shenanigans!

     

     

Blessed every day to be together.  

     

Our handsome boy!

     

     

     

Daddy's boy!

Always be my baby boy!

And this...this picture is everything.  I can't even put into words the beauty of this moment.

Little Buddy has been doing well at school and at Run Club!  His first race went well.  He hasn't been able to run a lot at Run Club because he's still working on building his strength and endurance back up, but he did run this race!

Ready for Tie Dye Day at school!

Rainbow at Field Day!

First one mile race of the season down!

Not everything was rainbow and sunshine however; Little Buddy had to have his annual ABR to test his hearing.  Unfortunately, it ended up being a long day due to some paperwork issues.  He came through it ok, but he was feeling pretty rough.  On the bright side, his hearing is stable!

Ready to go and smiling at the beginning of the day!

Feeling a little crappy after the procedure.

So over it all.  Hiding from the world.

And our Sanfilippo work never takes a rest.  First off, Momma had to go to DC for a conference and to meet with the FDA and a drug company.  Secondly, we were able to meet with another newly diagnosed family, this one very close to home.  

Not so sure about Momma leaving...

...but he's very excited about Momma coming home!

And this is A (I promise, both she and Little Buddy were having a better time together than this picture shows.  This was at the end of a long fun night!).  A is the daughter of Little Buddy's music therapist at school and we had a hand in getting her properly diagnosed.  Meeting A just reminds us how important our advocacy work really is.

Height and Weight

Still hanging strong at 69 pounds and just under 53 inches!

Personality

School is tiring him out, but overall, he is still very joyful! 

Developmental Changes

Nothing big to report here, which is good.  I'll take stable any day of the week!  Still loves riding his trike on the cool days we get and has been doing well in his speech and OT sessions.  Lots of singing and food words!

     

Fun Tidbits

The other big thing that ate up our time in October?  Baseball!  We were excited to cheer the Astros to the World Series!  They ended up being World Series Champions and we were happy to join in on the celebration!

Let's go Stros!

Whelp, that is it for this month!  Time for bed!

May you all be so lucky as to have a BatDad to read you bedtime stories!

Good night, 

LBM

Little Buddy's Momma