Wednesday, October 11, 2017

October 11

Our baby boy is back to about 95% of his normal self since the terrible withdrawal he went through at the end of the clinical trial.  We are so thankful for every single day with him after experiencing the fear we did of losing him last month.  This month was lots of smiles as we got back to our day-to-day life.  

     


Lots of smiles, but you have to be quick to catch them!



School is back in full swing and he is doing well!  They had their first dress up spirit week for Friendship Week and we had fun picking out his outfits!


Nerd Day!  It's smart to be a good friend!





Jersey Day, because we're all on the same team!




Twin Day with his friend, N!



     


I think Pajama Day was definitely his favorite, as he dreamed of being a good friend!



     


They also had their annual Dad and Donuts Day.  These handsome guys were excited to attend!



Besides school, horse therapy is back up and running too!  So glad to see him riding again and to know how much it is helping him.


Look at Little Buddy trot!



A new addition to our routine is Little Buddy's faith formation and sacramental prep.  Our Church has been very supportive as we work to prepare him for this important year in his faith and we are blessed to be able to do this together as a family.


Working on our sacraments!




Height and Weight
And the growing has continued!  He is now 69.2 pounds and 52 and 5/8 inches tall.  


Personality
Still our happy and excitable boy.  Praying his joyful personality keeps shining for a long time!  


Developmental Changes
He's been getting stronger every day!  Overall, he's back up to where he was prior to the end of the trial.  We do notice that his toe walking has increased and his fork usage has decreased, but we are working with his occupational therapists diligently to help retain his skills.  He has been talking more though and making his speech therapist happy!


Fun Tidbits
It's fall!  So many of Little Buddy's things happen in October.  


Pumpkin pie time!  Happy to keep up his pie obsession with a family favorite fall treat!



     

Halloween decorations means the return of Mr. Bones!  The good news is that Little Buddy still loves him.  The bad news is that he no longer wants to get on the bus in the morning because it means leaving Mr. Bones!



And Halloween means it's time to go costume shopping!  This was the first year that Little Buddy couldn’t vocalize his costume choice to us. In previous years, we could just ask him what he wanted to be for Halloween and he could tell us, even if it was only a one or two word answer. This year, while he still has some verbal ability, he will not always answer direct questions, so we had to get creative! We took him to 3 different costume stores and at each one he pulled down the stormtrooper costume. I’m taking that as his pick! However, he refuses to wear a mask or anything that covers his face. Thankfully, we found this stormtrooper ball cap which he is willing wear, thus completing his outfit. We’ve also been able to get him to say, “Trooper!” when asked what his costume is. But you know what he doesn’t need any help saying? “Trick or treat!” This kid is ready for some candy!

     

"I a Trooper!"


Now to see what the rest of the fall season brings!  

Until next month, 

LBM

Little Buddy's Momma

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